Resources & Support
Find resources and support centered on epilepsy that can educate and empower
Stopping the Stigma
Living with epilepsy and hard-to-treat seizures is about more than treatment management. It’s about dignity, visibility, and being seen for one's full story, not the condition. Light Up Epilepsy, a project of UCB, is about not only advancing care but also reshaping conversations. Together, we’re breaking down stigmas, amplifying patient voices, and building a community that shines a light on resilience.
UCB’s programs and resources make that commitment real. From scholarships that open doors and service dogs that foster independence to patient and caregiver support through every step of the treatment journey, UCB provides more than care—we provide connection. Add in real family stories, accessible education, and direct access to trusted treatment, and the message is clear: No one faces epilepsy or hard-to-treat seizures alone.
EMPOWERING PROGRAMS
The programs below are helping to stop stigmas associated with epilepsy by empowering and enabling those living with epilepsy.
CANINE ASSISTANTS
This nonprofit organization is dedicated to providing service dogs to children and adults with epilepsy. Seizure response dogs are trained to retrieve a phone prior to a seizure, summon help in a controlled environment, and stay with their person during a seizure. The dogs not only provide assistance; they can also instill confidence by enabling their recipient to do activities they may be reluctant to do because they have epilepsy. They also provide companionship and contribute to the overall emotional well-being of the person they are placed with.
THE UCB FAMILY EPILEPSY SCHOLARSHIP PROGRAM
This scholarship provides financial support for individuals with epilepsy or family members/caregivers who demonstrate academic and personal achievement. Funded by UCB, Inc., this program helps people living with epilepsy, family members, and caregivers build lives and achieve their dreams at both the undergraduate and graduate level.
UCBCares
UCBCares is a dedicated service providing support to patients and healthcare professionals throughout the treatment journey. UCBCares is a helpline staffed by real people who are professionals at helping both patients and healthcare providers with treatment questions on all UCB treatments.
MORE RESOURCES
These informational sites have tools and resources to help educate on epilepsy and associated syndromes, such as rare forms of epilepsy and hard-to-treat seizures. Find scientific information, lifestyle guidance, and tools to help you better understand life with epilepsy, whether you are living with epilepsy or support someone who does.
SHINE FORWARD WITH DRAVET
Learning about the experiences of families living with Dravet syndrome can make all the difference for caregivers and loved ones. This site features advice from real caregivers about managing daily life, sibling support, and more. The stated goal is for families to feel supported and prepared to take on each day.
SHINE FORWARD WITH LGS
Shine Forward With LGS is an online destination that celebrates the strength of the Lennox-Gastaut Syndrome (LGS) community. They provide support to families with loved ones of all ages living with LGS, so they feel heard and prepared to confidently take on each day.
EXPLORING EPILEPSY TODAY
Epilepsy Today offers information for anyone on every part of living with epilepsy to equalize health gaps among social, economic, racial, age, ethnic, and geographical groups that affect millions of Americans living with epilepsy. The resources section, especially, offers a multitude of tools.
